SCHAF Advocates for Newborn Screening in Sickle Cell Care

Professor Adeyinka Falusi, representing the Sickle Cell Hope Foundation (SCHAF), has called for urgent action to close the survival gap for individuals living with sickle cell disease in Nigeria. Speaking at the 2026 World Sickle Cell Day commemoration, she emphasized the necessity of nationwide newborn screening to ensure early detection and treatment, which are critical for improving survival outcomes.

Falusi noted that Nigeria records approximately 150,000 births annually involving sickle cell traits, with many children dying due to late diagnosis and inadequate access to treatment. She urged for stronger investments in research and access to advanced therapies, including gene therapy and bone marrow transplants, which remain largely inaccessible.

Dr. Wahe Lanr Abba, representing the government, reiterated the commitment to reducing stigma and improving healthcare delivery. Dr. Olusola Akand from OYSHIA mentioned efforts to enroll 10,000 patients in the state health insurance scheme to alleviate financial constraints.

The importance of integrating oral healthcare into sickle cell management was also highlighted by Dr. Oluwakemi Nasiru.